Features September 2011 Issue

Autism Assistive Dogs can be Life Changers for Children with Autism

Increasingly, dogs are being used as valued therapeutic companions for autistic children.

Kids and dogs. Everyone agrees they go together, but for children with autism, dogs can be far more than best friends. They can be therapists, comforters, mood stabilizers, and conversation starters. They can help wandering children stay home, help distracted children stay focused, improve a child’s communication and social skills, and help everyone in the family relax.

Autism Assistive Dogs

Six-year-old Prudence snuggles with her service dog, Kaiya, a graduate of Blessings Unleashed, of Bowling Green, Kentucky, an organization that trains and places autism assistance dogs.

Wisconsin residents, Rachel and Terry, knew their daughter, Prudence, was different. Two years ago, at age four, she was diagnosed with Autism Spectrum Disorder (ASD). Prudence didn’t interact with other children, had a short attention span, struggled to express herself, was easily distracted by sounds, tastes, smells, and movement, often felt anxious, and found comfort in repetitious behaviors and language. “The autism diagnosis scared us but it made sense,” says Rachel. “We searched for anything that could help her.”

Rachel discovered Blessings Unleashed, a nonprofit organization that pairs autism service dogs (also called autism assistance dogs) with children. In early 2011, a yellow Labrador Retriever named Kaiya officially became Prudence’s service dog. According to the Americans with Disabilities Act, service dogs have been trained to do work or perform tasks that benefit individuals with disabilities and must be allowed access to businesses and organizations that serve the public.

As soon as the two met, Prudence lay next to Kaiya and didn’t want to leave her side. At the family’s initial orientation at Blessings Unleashed, Prudence said without prompting, “Kaiya makes me feel better.”

Autism Assistive Dogs

Her mom says Prudence wasn’t interested in dogs before Kaiya. At their first meeting, an orientation, Kaiya lay down next to Prudence and didn’t want to leave her side. Unprompted, Prudence said, “Kaiya makes me feel better.”

Now, six months later, Rachel and Terry are amazed at how in tune Kaiya is to Prudence’s needs. “If Prudence cries or screams,” says Rachel, “Kaiya is immediately at her side to provide comfort. Kaiya sleeps on Prudence’s bed every night and we often wake to hear Prudence talking to Kaiya, which is wonderful for her speech development and pragmatic language skills. One day we went to a party where we couldn’t take Kaiya, and the experience was difficult for Prudence. As soon as we returned home she ran to the dog and said, ‘Kaiya, I wish you were at the party – I missed you so much!’”

Kaiya’s most significant impact may be her calming effect. “Prudence is much more present and less anxious with Kaiya around,” says Rachel. “We have noticed less scripted speech and more spontaneous conversation. An added benefit is the improvement we have seen in Prudence’s awareness of others. Because she’s responsible for feeding and brushing Kaiya, she has started to show a greater interest in others. She now plays with baby dolls. She feeds them, holds them, sings to them, walks them in a stroller, and puts them to bed every night. She showed little interest in this before Kaiya arrived. She also plays and talks with her little sister. We couldn’t be more thrilled with these new interests!”

Autism Assistive Dogs

Nine-year-old Xander and his autism service dog, Woody, had been a team for three years when this photo was taken. Woody is a graduate of Canine Companions for Independence.

Six years ago at the Southeast Regional Facility of Canine Companions for Independence (CCI), an organization that breeds, raises, and trains service dogs for children and adults with disabilities, Xander Rousseau met his service dog for the first time. “It took three days of working with several different dogs before we had our official ‘match,’ ” recalls his mother, Adrienne Levesque, “and Xander had his heart set on a black Lab named Woody. The entire class cheered when his wish was granted.”

On their first Friday night at CCI, Woody slept in the family’s dorm room. “It was the first night in Xander’s illness history that he slept through the night,” says Levesque, who is a founding and current board member of the National Autism Association. “It was a miracle! At the conclusion of the two weeks, Xander was answering simple questions about ‘his dog’ and he hugged Woody’s trainer! Wow! In two short weeks we rejoiced over major milestones!”

For the past six years, Woody has provided Xander with constant acceptance and affection, accompanying the boy to hospitals where he underwent tests and surgeries as well as to grocery stores, Walmart, and other places that had previously been overwhelming.

“He made it possible for us to navigate a parking lot without the fear that Xander would run away. Woody visited school at the beginning of each year so that Xander could transition successfully, and he became Xander’s motivation to work hard in the various therapy programs we used.”

With Woody’s help, Xander moved from the nonverbal, self-stimulating world of rocking and moaning to a life less dominated by ASD symptoms. “Is he cured? No,” says Levesque. “We still face communication and social hardships. We still battle digestive and seizure disorders. Hopefully we will continue to prevail, battle by battle, until we can say we have completely defeated autism.”

Autism Assistive Dogs

Today, Xander is 13. He happily posed with Woody for this photo, saying, “Other people should know about how awesome Woody is.” When asked what therapy has been most useful for helping Xander, his mom says, “The most amazing miracles God has given us came with the assistance of a beautiful black Lab named Woody.”

Today 13-year-old Xander is heading into eighth grade, where he is enrolled in academically advanced classes, enjoys the swim team, and plays year-round soccer. “We rejoice over the fact that he has many friends,” says Levesque, “the best of which remains his faithful Lab, Woody.”

Autism Dogs
Although the demand for autism dogs has created many approaches to this type of therapy, the field’s established foundations focus on careful breeding, raising, training, placement, follow-up, and support for these special animals and the families who adopt them. The traits that make good service dogs are well documented and can be tested for at a young age. Because of their stable temperament and intelligence, Golden Retrievers, Labrador Retrievers, and Golden Retriever-Labrador Retriever crosses are widely used.

These dogs can be trained to go after a child who is running away and return the child to the parent, interrupt repetitious or self-harming behaviors, calm a child who is having a tantrum by crawling onto the child’s lap, alert parents if the child wakes at night, and improve the child’s verbal skills by responding to spoken commands.

At Blessings Unleashed, Kaiya was trained to lean or “snuggle” on Prudence when the girl is having a meltdown, interrupt repetitive behaviors by nudging or licking her hand to break the cycle, and to track and find her if she becomes separated from her family.

Autism Assistive Dogs

In contrast to “service dogs,” who spend their lifetimes with their client/partners, “therapy dogs” provide occasional visits to their clients, usually as part of a therapeutic program. Journey and her owner Mary Domes (seen here with Joshua, who has autism) participate in the READ program in Pleasant Prairie, Wisconsin.

Eighteen years ago, in what she calls the “dark ages” of autism, Patty Dobbs Gross turned to Canine Companions for Independence on behalf of her son, Danny, whom the organization paired with Madison, a Golden Retriever. “Madison helped Danny grow into the emotionally balanced and socially confident young man he is today,” she says. “He is currently a graduate student at the University of Southern California’s School of Cinematic Arts.”

Madison so inspired Gross that she went on to create North Star Foundation, which during the past 10 years has placed over 100 unique assistance dogs with children who face social, emotional, and educational challenges. Her program differs from that of most service dog organizations because instead of placing trained adult dogs with children, North Star places carefully screened puppies with carefully screened families. Puppy and child grow up together, and the entire family participates in the puppy’s training.

“We educate parents carefully over a long period of time to be sure they provide the necessary supervision and training,” says Gross, “and we screen out children who lash out physically when upset. Having this happen is the only reason besides neglect for which we would remove a dog from a home; we once went to court to do this. In a service dog/child team it is very important to meet the dog’s needs as well as the child’s to keep the placement safe as well as effective. Our dogs ‘work’ for their children, not just the parents, but this is because we actually breed specifically for dogs who take a shine to children, and then we socialize them for children in general and for their own child specifically.”

Gross and her trainers use positive reinforcement training methods exclusively, so North Star dogs are never punished. Instead, they are encouraged to think and act independently.

“We strongly disapprove of programs that use ‘tether dogs’ or ‘babysitter dogs’ that are physically tied to children with autism,” she says. “That’s cruel to the dog and dangerous for both. On five separate occasions, North Star dogs have kept their children safe from wandering, once by delivering a warning bark when the child was taking off, once by nudging the child homeward, and three times by simply following the wandering child until someone noticed the team, read the dog’s collar, and notified the family. But safety is not our primary goal. Our primary focus is meeting our children’s social, emotional, and educational needs.”

Autism Assistive Dogs

Scientific Support
For years reports about the benefits of canine companionship for children with autism were considered heartwarming anecdotes of no scientific importance.
Then researchers began taking a closer look. In 2008 the Journal of Veterinary Medical Education described challenges faced by families with autistic children paired with service dogs, including public-access issues, learning to understand canine behavior, the extra work involved, training commitments, financial responsibilities, and the dog’s impact on family dynamics. “Despite the effects and consequences of these challenges,” researchers concluded, “parents overwhelmingly reported that having a service dog to keep their child safe and to provide companionship was well worth the many inconveniences of service-dog ownership.”

At Maryville College in Maryville, Tennessee, Ariane K. Schratter, PhD, Associate Professor of Psychology, developed an ongoing community-based research partnership with Wilderwood Service Dogs to study the effects of using specially trained dogs for children with autism.

“After the first year with their service dog,” says Dr. Schratter, “parents tended to report decreased problem behaviors such as aggression, fear, and arousal, and an increase in adaptive behaviors, such as eye contact, joint attention, and social inhibition. Many of the children showed improvement in their overall level of functioning.

“The dogs likely elicit positive social interactions in public, helping children with autism successfully interact with others. The dogs’ presence may also reduce physiological arousal at the root of some problem behaviors while providing clear and consistent nonverbal communication cues that children with autism can interpret, thus increasing their adaptive skills. The data suggest that the innovative use of specially trained service dogs may be an important tool for helping the social and language behaviors of children with autism.”

One of the most widely reported benefits of canine-child interaction is reduced anxiety. Now researchers think they know why dogs have such a calming effect. In September 2010, the medical journal Psychoneuroendocrinology published a study that compared levels of the stress hormone cortisol in 42 children with ASD before and during the introduction of a service dog into their families and after the dogs were removed for a short period.

“We found that the introduction of service dogs translated into a statistically significant diminished Cortisol Awakening Response (CAR),” they reported. “Before the introduction of service dogs, we measured a 58 percent increase in morning cortisol after awakening, which diminished to 10 percent when service dogs were present. The increase in morning cortisol jumped back to 48 percent once the dogs were removed from the families…. These results show that the CAR of children with autism is sensitive to the presence of service dogs, which lends support to the potential behavioral benefits of service dogs for children with autism.”

Autism Assistive Dogs

No one can be “on duty” 24/7, and service dogs are no different. Kaiya’s family makes sure she gets time off for recreation and exercise (with her favorite toy, a Frisbee), and to just be a dog.

Therapy Dogs at Work
Service dogs aren’t the only four-legged therapists that help children with autism. Therapy dogs make a difference, too. Unlike service dogs, which are permanently paired with their human partners, therapy dogs belong to volunteers who take them to nursing homes, hospitals, schools, and other facilities, usually for an hour at a time. Their visits are considered Animal Assisted Activity or Animal Assisted Therapy depending on whether the visits have specific therapeutic goals and are documented.

For more than 10 years, Reading Education Assistance Dogs® (therapy dogs participating in the READ® literacy program) have visited schools and libraries, where children read out loud to them.

Seven-year-old Joshua (seen in the photos below) had trouble making sense of human emotions until one of his therapists started taking him to read to a dog in the READ program named Journey. “Until then,” says his mother, Ginger Rasmussen, “he was indifferent to animals, as though they were a piece of furniture or a stuffed animal. But after he began reading to Journey, he started petting his own dog and cat, started talking to them and interacting lovingly with them, and before long he began caring and asking why the baby was crying or why mom was happy. He began to feel empathy. Reading to Journey gave Josh the last piece of the puzzle to make him whole. The quiet patience of a READ dog opened a door that we thought was locked forever.”

As reported in the New York Times in November 2010, visits from therapy dogs have become part of the curriculum at the Anderson Center for Autism in Staatsburgh, New York. One nonverbal 11-year-old boy who at first hid from Shadow, a black Labrador Retriever, now asks to walk, pet, and feed her, interactions that help him communicate with teachers and fellow students.

A California teacher who brings her therapy dog to school tried for years to teach one boy to say hello and goodbye. He began greeting the dog, then the teacher, and now he says hello and goodbye to his classmates. 

What Parents Need to Know
It would be wonderful if dogs improved the lives of all children with autism – and if all dogs paired with children lived happy, relaxed, fulfilling lives of their own. But service dogs aren’t for everyone, and not every child is a good match for a dog. Here are some factors for parents to consider before applying for an autism service dog.

Expense. Because of their successful fund-raising, Canine Companions for Independence and Guiding Eyes for the Blind provide service dogs to children with autism at no cost, but most service dog organizations ask families to pay part or all of the considerable cost of raising and training these special animals.

North Star asks families to raise half of a service dog’s $10,000 placement cost ($5,000). Wilderwood Service Dogs requires families to raise the full cost of each service dog ($12,000), as does Autism Service Dogs of America ($13,500). Blessings Unleashed asks families to pay the full cost of a service dog ($10,500) or companion dog ($5,500). Companion dogs provide emotional support and do not require the extensive training that service dogs receive.

When Prudence’s parents began raising money to pay for Kaiya, they reached their goal in less than two months. “Fund-raising may seem like a daunting task,” says Rachel, “but it helps to just tell your story. People often feel helpless and don’t know what to say or do for a family affected by autism. Our supporters were excited about Kaiya and most had no idea that service dogs were being utilized to help autistic people.”

Commitment. Bringing a service or companion dog into a household requires commitment. In addition to basic care, these dogs need ongoing training with the entire family, close supervision from parents, and ample play, exercise, and down time. In many ways bringing a service dog into the family is like adopting a child. Families with canine experience, a fondness for animals, and good organizing skills have a head start.

Autism Assistive Dogs

The North Star Foundation, based in Storrs, Connecticut, trains and places service dogs – and provides educational resources to those interested in learning more about these amazing dogs. Here, North Star’s Angel helps with a school presentation that educates children about autism as well as assistance dogs.

As Rachel explains, “Our responsibilities for Kaiya include working on her service dog-skills daily, keeping her well groomed, feeding her a high-quality dog food, and keeping her in peak physical condition. When Kaiya is not working it is important for her to be a regular dog, so when she is at home we make time every day for her favorite game – Frisbee! We will also have to take yearly public access tests that demonstrate Kaiya’s service dog-skills in order to be re-certified as Kaiya’s handlers. Having a service dog is definitely an added responsibility with two small children, but the rewards have been many, and we are so thankful to have Kaiya in our lives.”

The Right Child. Not every child with autism can be successfully paired with a service or companion dog, such as children who are afraid of dogs, whose uncontrolled actions may harm a dog, whose families are not able to adjust to the needs of a dog, or whose parents expect the dogs to perform magic.

As K. Burrows, C. Adams, and S. Milman reported in the Journal of Applied Animal Welfare Science in 2008, “There is a tendency for parents, especially those with little experience with dogs, to fall victim to ‘Lassie syndrome’ and the belief that real dogs are capable of the sorts of things that fictionalized dogs do, that they are capable of reasoning as humans do, and are qualified to babysit children.”

The Right Program. Researching autism dog programs can be exhausting, especially for those who are new to dogs, but informed parents are better equipped to make good decisions. The Burrows study, which examined 10 children and 11 dogs from a program that tethered dogs to children with autism, revealed problems that had not been addressed prior to the dogs’ placement.

Most of these children showed no interest in their dogs during the first six months of placement. Dogs bonded primarily with one of the parents and some showed signs of separation anxiety when forced to sleep in the child’s room at night or when sent to school without the parent. One dog was returned because it ran after another dog, dragging the child to whom it was tied. These dogs showed evidence of stress and fatigue, especially when sent to school with children because of the long hours and lack of down time, and dogs experienced stress when their child had a tantrum and aggressively struck at the dog.

Programs that emphasize family education, give parents realistic expectations, provide extensive training, follow-through, and support, select appropriate dogs for this type of work, prevent their dogs from suffering stress or abuse, and utilize positive rather than punitive training methods are most likely to generate positive results.

Freelance writer CJ Puotinen lives in Montana. She is the author of The Encyclopedia of Natural Pet Care and other books and a frequent contributor to WDJ.

Comments (1)

The concerns in my family about getting a "service" dog or any dog for that mater, for an autistic family member, are the issues around autism and a "lack of empathy'; creating a potentially dangerous situation for the dog depending on the response of the child, at any time. Of course, this might be mitigated by a "no-dog without adult supervision" clause, and I am fairly sure my family member with autism is never "alone" unless asleep. However, I found this to be an interesting, if not disturbing lesson in (some) realities of the autistic mind and behavior.

Posted by: DONNA L | April 25, 2013 12:33 PM    Report this comment

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